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marieintheraw's review against another edition
3.0
This was initially an impulse read based on the cover; however, as someone who has an interest in knowing more about diseases, I was fascinated. The author manages to balance the voice between the discussing Cystic fibrosis as well as other diseases including the future of medicine. It was a bit of an intense topic; however, and could be broken a bit better.
I received an ecopy of this through Netgalley; however, all opinions are my own.
I received an ecopy of this through Netgalley; however, all opinions are my own.
mllqnn's review against another edition
5.0
I really admire how the author structured this book. It took a while for me to get through because the topic is difficult both emotionally and intellectually. However, the whole thing was very good, informative, and inspiring.
cseibs's review against another edition
3.0
This book was fascinating but infuriating. It was amazing to learn that diseases can be treated if there is attention and money put to them. But it was so disheartening that you need attention and money - things not available to most. Trivendi did a disservice by never confronting that CF is a condition that white people suffer and their whiteness makes them able to get political attention and deep pocket donors. Trivendi was almost noncritical of a government and pharmaceutical industry that are entirely profit driven, and which jump at big dollars instead of need. I enjoyed learning about the research and development process but couldn't help being thoroughly disheartened that this is only available to people with means - and disappointed that Trivendi didn't address the gross racial and socioeconomic inequity of this system.
pattypy's review against another edition
challenging
emotional
hopeful
informative
inspiring
medium-paced
5.0
drerinmac's review against another edition
5.0
A fascinating and gripping read; the best of narrative non-fiction. I found myself gripped by the saga and lengthy stories of cystic fibrosis, and I learned a lot that has really stuck with me.
kevenwang's review against another edition
5.0
A well written complete history on CF. I do believe CF will be cured within our lifetime. Thank you Bjal for writing a book with so much humanity in it
mariahhanley's review against another edition
5.0
This is an incredible, well-researched, and thorough look at the past and present of cystic fibrosis. As a person with CF, I learned so much about myself and the condition I live with every day. I highlighted probably 50 passages and spent the last ten days asking my family “Did you know this? What about this?” and telling them cool things I learned. I would compare this to The Gene- it is undeniably science writing, but it is perfectly accessible for someone without a science or medicine background. I’ve recommended it to dozens of people, and just cannot day enough positive things about the book. I am just thrilled that a book about the history of CF exists, and that it’s this phenomenal book.
I received a review copy from the publisher, which in no way affected my review.
I received a review copy from the publisher, which in no way affected my review.
judyb's review against another edition
hopeful
informative
inspiring
medium-paced
5.0
Really enjoyed. Incredible insight into the development of drugs to help cf patients